Below, you can find all of DeNPRU Exeter’s outputs which we make freely available.
What Works When Working Together? A practical guide for involving people with different neurodegenerative conditions in policy research
With funding from the University of Exeter’s Public Engagement with Research (PER) Springboard Fund, we were able to run a brief co-production project. We wanted to create some guidance for how to involve people with experiences of different neurodegenerative conditions in research. Through online meetings, reflections and choosing the design, we have created a free-to-use resource which we hope will be helpful to many facilitators, researchers and more.
Through our meetings, the guide took shape to include not only topics such as ‘forming a group’ or ‘starting well’ but also ‘dealing with emotional topics’ and the differing – sometimes contradictory – accessibility requirements we need to negotiate.